Christopher L. Moertel, MD, University of Minnesota, discusses the trial data that helped get mirdametinib approved and what providers can do to keep measuring quality of life (QOL) improvements.

RECKGIST score may predict recurrence in neurofibromatosis type 1 GISTs, potentially guiding treatment decisions, according ...

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Patients receive exceptional care from a multidisciplinary team of specialists who collaborate in the treatment and management of NF and its complications. Dr. Bruce Korf, medical geneticist, ...

After months of waiting, a young boy from Cuba battling a medical condition is getting a second chance at life after he and ...

Researchers have found in a nonrandomised pilot trial that selumetinib showed a reduction in cutaneous neurofibromatosis ...

Sumrall, MD The FDA has approved an oral, small molecule MEK inhibitor for adult and pediatric patients 2 years of age and older with neurofibromatosis type 1 who have symptomatic plexiform ...

We are grateful for the support from the Children’s Tumor Foundation, a vital partner in this journey, and to the Neurofibromatosis Clinical Trials Consortium for making this clinical trial a ...

The night will honor Nick Gilbert, late son of Cavaliers Chairman Dan Gilbert. Fans will receive a special bobblehead as part of the awareness campaign about neurofibromatosis.

UF Health Jacksonville has joined the NF Clinic Network to provide specialized care for individuals with neurofibromatosis and schwannomatosis. These genetic conditions can cause tumors to grow on ...