This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to ...

Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...

Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...

What Is Gene Therapy? The cystic fibrosis transmembrane conductance regulator (CFTR) gene contains the instructions for making the CFTR protein. When there is a mutation — or alteration — in the ...

The Impact of the CF Community This month is a celebration of you — the individuals, families, and supporters who make up the CF community. You can join us by sharing your accomplishments, milestones, ...

The Cystic Fibrosis Foundation appreciates the opportunity to submit comments on the IHAWP 1115 Demonstration Amendment. On behalf of the more than 430 people with cystic fibrosis living in Iowa, we ...

The Cystic Fibrosis Foundation strongly condemns the Senate’s reconciliation proposal, which will destabilize Medicaid and the Affordable Care Act (ACA) marketplace. If this bill becomes law, there ...

After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.

The undersigned organizations, representing clinicians, scientists, patients, public health, animal agriculture and the biopharmaceutical and diagnostics industries, urge you to increase federal ...

Hearing the words cystic fibrosis can be a lot for first-time parents — or any parent. In the fall of 2019, my husband David and I showed up for an OB-GYN appointment. I was about 11 weeks pregnant ...